Retinoblastoma – just diagnosed If your child has just been diagnosed with retinoblastoma, it can be an extremely stressful and frightening time. We are here to support you in any way that we can, and your support worker will chat to you on the ward about how best we...
Hi everyone! I am Lena and have recently joined the CHECT team as a Support Worker at the Royal London Hospital. For the past 15 years my working life has been spent in the charities sector, beginning with Save the Children then Living Earth Foundation and most...
Young CHECT member Suri (age 10) was born with bilateral Rb. As a result of having chemotherapy as a very young child, he has had to visit Great Ormond Street (GOSH) for a hearing test. He kindly shares his blog with us about the experience. I have been through many...
Louise shares how her retinoblastoma has not held her back, but also how important it is to be aware of the risks of adult second cancers. My Rb journey started back in November 1973. I was eight months old when my Mum noticed my eyes were watering a lot and that I...
Diagnosed with bilateral retinoblastoma 33 years ago, Aazmeen shares her story of how inheriting the Rb gene has had an impact on her life. It was March 1987, I was eight months old when my parents took me to the GP who then referred me to an eye clinic based in...
Nicole shares her retinoblastoma story, from her lengthy treatment and struggles with being self-conscious at school, to finally embracing her artificial eye and becoming the confident woman she is today. In February 1992, two months after I was born, my mum took me...
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